NYC clinical trial for girl, 10, with rare blood disease

Lilly Vanden Bosch was diagnosed with Aplastic Anemia in 2013

Lilly Vanden Bosch Aplastic Anemia
A photo of Lilly Vanden Bosch from the "Lilly vs Aplastic Anemia" Facebook page. (April 2, 2016)

UNDATED (WOOD) – An Allegan County girl battling a rare, life-threatening blood disease has been flown to New York City where her family says she’s starting a clinical trial.

Courtesy photo of Lilly Vanden Bosch.

Lilly Vanden Bosch, 10, was diagnosed with Aplastic Anemia in 2013. She underwent a bone marrow transplant in November 2015, which was made possible by an anonymous donor in Europe, but has since had complications.

Lilly’s family is documenting her heartbreaking journey on a Facebook page titled “Lilly vs Aplastic Anemia.” They posted that Lilly will be part of a cutting-edge medical treatment called Adaptive T-Cell Therapy, where a specific kind of white blood cells will be injected into her to help eliminate a virus.

Lilly may also have to have what her dad is calling a mini-transplant in the future.

To get updates about Lilly’s recovery, check out the “Lilly vs Aplastic Anemia” Facebook page.

 

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