NYC clinical trial for girl, 10, with rare blood disease

Lilly Vanden Bosch was diagnosed with Aplastic Anemia in 2013

Lilly Vanden Bosch Aplastic Anemia
A photo of Lilly Vanden Bosch from the "Lilly vs Aplastic Anemia" Facebook page. (April 2, 2016)

UNDATED (WOOD) – An Allegan County girl battling a rare, life-threatening blood disease has been flown to New York City where her family says she’s starting a clinical trial.

Courtesy photo of Lilly Vanden Bosch.

Lilly Vanden Bosch, 10, was diagnosed with Aplastic Anemia in 2013. She underwent a bone marrow transplant in November 2015, which was made possible by an anonymous donor in Europe, but has since had complications.

Lilly’s family is documenting her heartbreaking journey on a Facebook page titled “Lilly vs Aplastic Anemia.” They posted that Lilly will be part of a cutting-edge medical treatment called Adaptive T-Cell Therapy, where a specific kind of white blood cells will be injected into her to help eliminate a virus.

Lilly may also have to have what her dad is calling a mini-transplant in the future.

To get updates about Lilly’s recovery, check out the “Lilly vs Aplastic Anemia” Facebook page.




Be The Match Online Registration

Lilly vs. Asplastic Anemia

Comments are closed.